BELOIT — As most spectators at last weekend’s Southern
Wisconsin AirFEST craned their necks toward the sky
to watch the show, 4-year-old Tyler Ward and his
brother, 3-year-old Tanner, were limited to hearing
the planes as they cruised down the flight line.
Not that it took any enjoyment out of the experience
for the Beloit siblings.
“That’s a jet!” exclaimed Tanner as he sat with
his parents inside a VIP tent during Saturday’s performance.
Both boys are legally blind. They were born with
achromatopsia, a genetic condition that affects how
their eyes respond to light.
Their mother, Kim, likened their experience to seeing
the white spots in your eyes after exiting a dark
movie theater; however, the boys’ eyes never fully
readjust.
Andrea Johnson, an AirFEST volunteer and a nurse
at the clinic the boys attend, wanted to make the
air-show experience a special one. She provided the
family with VIP tickets and arranged for them to
meet pilots and put their hands on show aircraft.
The experience touched performers as much as it
did Tanner and Tyler.
Lt. Adrian Jope, a pilot with the U.S. Navy VFA-106
F/A-18 East Coast Demonstration Team formed a special
bond with the family.
“I saw them every single day,” Jope said. “It was
kind of the highlight of my day. I never would have
imagined I would have hit it off so well with that
family.”
Kim Ward said the experience was just as special
for the boys, who love the vibrations and sounds
of the planes.
“I can’t tell you what a thrill this was for them
to touch the planes,” she said, adding that her sons
were able to associate planes in the sky with the
ones they touched on the ground.
The family’s experience at this year’s AirFEST was
far different than last year, when they watched the
action from beyond the gates. Kim Ward and her husband,
Jim, said they are cautious with the boys because
often they don’t respond well to crowds. Tanner and
Tyler both must wear prescription sunglasses that
simulate dusk conditions, allowing them a limited
amount of vision.
If exposed to light for too long, the boys are rendered
completely blind for a period of time.
Even when they aren’t exposed to light, they can
see only several inches in front of them. There is
a chance that their vision eventually could deteriorate
completely.
The boys’ condition inspired Johnson to give them
a special experience at this year’s air show.
“Knowing they had a limited amount of vision, I
wanted them to experience as much as possible,” she
said. “Their story just touched me.”
Jope agreed.
“I was completely moved by their story,” he said.
“I have two kids of my own, and just to see what
those kids were going through, I couldn’t imagine.”
Among the show participants the boys talked with
was Jennifer Jones, a media coordinator with the
Canadian Snowbirds, who gave the boys pins and teddy
bears with the Snowbirds’ insignia.
“It’s so touching,” said Jones, who added that jet-team
members frequently visit hospitals and schools. “For
me, it’s the best part of the job. To be able to
raise someone’s spirits, who could ask for more?”
The Wards gave their sons cameras so they could
capture images from the show to view close-up later.
Jim Ward said his boys won’t soon forget the weekend’s
activities.
“This is beyond beyond,” he said. “You can’t even
imagine what this will mean to them.”
Kim also was grateful for the opportunities.
“I don’t know how you say thank you for giving your
children a chance they’ve never had,” she said. “We’ve
met the most spectacular people.”